What began as a simple effort to address gaps in genotype awareness has grown into a structured, ongoing response. Today, the work focuses on preventing incompatible unions, expanding access to screening, supporting patients with care and medication, and reshaping how sickle cell disease is understood across communities.
It began with one community awareness day
Expanded into schools and faith communities
Launched structured patient support programs
Active across multiple communities nationwide and internationally
SCHAF was not built in a boardroom. It was built in clinics, classrooms, and family living rooms, in conversations with parents who had lost children to sickle cell, with young couples who had never heard the word “genotype,” and with patients who felt invisible to a system that should have been protecting them.
From those early conversations grew a structured response: prevent through education, detect through screening, support through care, and restore through community. That is the foundation we operate today; measured, methodical, and rooted in the people we serve.
To improve the lives of individuals affected by sickle cell disease through education, early detection, and access to support systems.
A society where every individual is informed, supported, and empowered to prevent and live well with sickle cell disease.
We move people through a clear arc — from awareness, to screening, to care, to belonging — so progress is never accidental.
Our comprehensive approach addresses every stage of Sickle Cell Disease management, from prevention and early detection to long-term care and reintegration.
Empowering individuals with knowledge about genotype compatibility, helping them make informed decisions and prevent incompatible unions.
Providing accessible genotype testing and screening services so individuals understand their status before it’s too late.
Delivering medication access, pediatric care, and ongoing support for individuals already diagnosed with sickle cell disease.
Breaking misconceptions and building supportive communities where individuals with sickle cell disease can thrive with dignity.
– Every individual deserves knowledge, care, and community –
Our programs map directly to the four stages of our approach. Each one is a structured response to a real, observed gap.
Most young couples never learn what genotype means until it’s too late.
We bring genotype education into schools, faith communities, and workplaces, in language that lands.
Testing exists, but cost and access keep it out of reach for most communities.
Free mobile screening drives bring testing, and counseling, directly to where people already are.
A diagnosis is only the beginning. Most families don’t know what comes next.
We provide medication access, pediatric guidance, and ongoing counseling for the whole family.
Stigma isolates patients from the communities they need most.
Support groups, public storytelling, and cultural sensitization rebuild belonging from the inside out.
Our first community awareness session reached fewer than fifty people. We listened, learned, and adapted, turning a single conversation into a model that could travel. That model now reaches schools, faith communities, marketplaces, and clinics across the country.
We measure progress not by how loud our message is, but by how quietly it changes lives, a couple who got tested before marriage, a child who started treatment in time, a young adult who finally felt seen.
Schools reached
Each session reshapes how a generation thinks about marriage, genotype, and choice.
Individulas screened
Patients supported
Each patient on our roster is a household sleeping easier with medication and counseling on hand.
Communities engaged
Each community we enter becomes a node — passing knowledge to the next on its own.
This short walkthrough offers a glimpse into SCHAF’s journey, from its beginnings in 2012 to the structured work it carries out today.
It captures how early awareness efforts gradually expanded into organized programs in screening, patient support, and community outreach across multiple regions.
A simple, visual look at how the foundation has grown. Shaped by consistency, partnerships, and a commitment to addressing sickle cell disease at scale.
A dedicated team of professionals, healthcare advisors, and community champions.
The Sickle Cell Hope Alive Foundation (SCHAF) is a non-profit organization dedicated to improving the lives of individuals and families affected by Sickle Cell Disease through awareness, advocacy, screening, and sustained support.
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