Awareness. Care. Advocacy.
Sickle Cell Hope Alive Foundation (SCHAF) advances awareness, patient care, advocacy, and research for Sickle Cell Disease, so families can act early and people living with SCD receive support with dignity.
Sickle cell disease is one of the most common genetic disorders on earth — and it hits hardest where resources are thinnest.
Since 2012, the Sickle Cell Hope Alive Foundation has worked through four connected pillars — Awareness, Care, Advocacy, and Research. Together they move people from knowledge to early action, from diagnosis to dignified support, and from individual stories to lasting change for everyone affected by sickle cell disease.
Educating communities, schools, and institutions about SCD, genetic inheritance, and prevention.
Providing emotional, medical, and financial support to individuals and families living with SCD.
Collaborating with global institutions on SCD research and pushing for policy change.
Advancing SCD knowledge through research partnerships, data, and evidence-led policy work.
Each program maps directly to one of our four pillars — nothing exists without reason.
Teaching young people what genotype means before marriage decisions are made.
Student-led clubs driving SCD awareness and engagement among young Nigerians.
Mobile screening in communities, faith centers, and NYSC camps — removing cost as a barrier.
Training nurses and clinic staff to properly treat SCD patients with chronic leg ulcers.
Multi-national research totalling $500K+ — studying SCD with HIV, hepatitis, and malaria.
Annual gifting days, free medication, counseling, and "Mothers of Warriors" programs.
Professor Adeyinka G. Falusi is a distinguished Nigerian haematologist and molecular geneticist whose lifelong dedication to science and humanity has transformed the understanding and management of Sickle Cell Disease (SCD) in Africa and beyond. Educated at the University of Ibadan, she obtained degrees in Chemistry, Haematology, and Human Genetics, specializing in haemoglobinopathies and inherited blood disorders.
Professor Falusi remained deeply concerned about the realities faced daily by People Living with Sickle Cell Disease (PLWSCD), particularly in Nigeria where the burden of the disease remains highest.
Driven by compassion and a desire to translate scientific research into practical community impact, she founded the Sickle Cell Hope Alive Foundation (SCHAF) in 2012. Established on the four pillars of Awareness, Care, Research, and Advocacy, SCHAF was created to reduce the burden of Sickle Cell Disease in Nigeria through education, counselling, healthcare support, advocacy, and research-driven interventions.
Since its inception, SCHAF has impacted thousands of individuals and families through genotype awareness campaigns, newborn screening advocacy, rural outreach programmes, patient counselling, empowerment initiatives, and community education. SCHAF has also experienced remarkable growth through collaborations with healthcare institutions, schools, NGOs, pharmaceutical companies, media organisations, and international partners including GANSID, SCDAA, and SCDC.
Today, Professor Adeyinka G. Falusi's legacy stands as a remarkable blend of scientific excellence, ethical leadership, mentorship, compassion, and transformative public health advocacy dedicated to improving the lives of Persons Living with Sickle Cell Disease across Nigeria and beyond.
Behind every number is a person whose life SCHAF has touched.
Founder, Trustee & Co-Chair
Sickle Cell Hope Alive Foundation
Ibadan, Nigeria
Executive Leadership Board
Trustee & Chairman
Sickle Cell Hope Alive Foundation
Ibadan, Nigeria
Executive Leadership Board
Trustee / President
Medical Doctor
Executive Leadership Board
Vice President I
Pharmacy
Executive Leadership Board
Vice President II
Nursing
Executive Leadership Board
Join us on the ground. Every event is a chance to learn, contribute, or simply show up.
Health AssemblyAn educational session on medicines and their roles in Sickle Cell Disease management, facilitated by Dr. Olayinka Kotila of the University of Ibadan at the Public Health Lecture Theatre beside Virology, opposite UBA, University College Hospital (UCH), Ibadan.
OutreachOur flagship outreach of the year. SCHAF distributes free medication, medical supplies, and care packages directly to sickle cell warriors and their families — a day built around dignity, practical relief, and community celebration.
ScreeningMobile screening teams visit communities across Oyo State offering free hemoglobin electrophoresis, on-site counseling, and follow-up guidance so families understand their genotype before major life decisions.